Blog

Welcome

These resources are designed to accompany Living a Healthy Life with Chronic Conditions, 5th Edition.

This list includes suggested further readings, useful websites, and other helpful resources. It's compiled by the authors of the book and maintained by the publisher.

photo of cover

Getting Started - Index

lemon To get started, select a topic below. Return to the topics list at any time by clicking Index on the left hand menu. 

 

Other things you might need

Visit the Self-Management Resource Centre | Millions of adults live with one or more chronic health conditions. Our programs help people and their caregivers manage their symptoms, improve their quality of life, and reduce healthcare costs.

 

Find a self-manangement program or workshop near you | This searchable map allows you to find programs or workshops by zip code, country, or you can filter by program.

 

Report a broken link  | If you would like to report a broken link or make a suggestion, please contact us

Post from Kate Lorig: It is a new year with new hope. A time to look back and forward.

This post was first published on the Evidence-Based Leadership Collaborative website. 

___

Kate Lorig, DrPH 

 
Looking back none of us would have predicted that a pandemic would be added to the normal problems of aging. No one predicted that we would go months without seeing loved ones and friends. No one would have predicted that that within a month of the initial shut down in the spring beloved programs such PEARLS, Walk with Ease and the Chronic Disease Self-Management Program would be offered via Zoom or by phone. No one would have predicted that by the end of the year, most of the Evidence Based Programs including Matter of Balance, EnhanceFitness, Fit & Strong1 and HomeMeds would be offered or ready for remote delivery. To date more than 10,000 people had participated in these programs, pandemic, or not. Again, we have shown the agility of the aging community.
 
Even in the darkest hours there has been light. We now have many ways of offering many programs. This means that more people can attend. Some things have not changed.
 
First serving older people in communities where they live is key. Community agencies throughout the nation, although overwhelmed with serving their communities, have found the wherewithal to offer programs in their communities.
 
Second, we are learning that even with social distancing loneliness can be chased away and new friendships made. We have welcomed new programs. We receive letters from people attending remotely delivered programs.
 
Here is some of what they say:
 
“Just knowing that someone cared enough to have a program like this really touched my heart. This was what I needed to encourage me, to help myself.”
 
“I especially enjoyed the two break-out sessions we had. Gave us the opportunity to share with each other”
 
“I want to thank you for providing funding for this and other health related courses that if continued, would save millions in health-related costs to the Government.”
 
“This Zoom class was extremely helpful in setting a new path for better health. I would never have committed the time and effort to an in-person class. Being able to participate from my home was more than doable.”
 
And we move forward. We will not be anywhere near a new normal for many months. We will continue to social distance, wear masks, stay mostly in our homes. There is also a new thing we can do, get vaccinated. After ten months alone, ten months of worry, ten months of uncertainty, I am more than ready. For me, getting vaccinated is part of good self-management. At the same time, I understand the hesitancy and distrust of many. You are not bad, evil or ignorant. Everyone has a reason for their beliefs and actions.
 
For those of you who do not want to get a vaccination, I ask that you consider the risks with the benefits. If bad things were happening to the millions of people already vaccinated, we would know. It is hard to hide what is happening to that many people living all over the country. They represent every state, every race, every ethnicity, every age. They are us.
 
If you just don’t trust the vaccine, ask yourself if you trust yourself, your family, your friends, and your community to be safe without the vaccine? The vaccine will only allow you and the rest of us to return to normal when most of us are vaccinated. Then the disease cannot find a home in our home or our community.
 
If you are worried that we do not know enough, you are right. We do not know how long immunity will last, but even if it is a few months or years, in the meantime we will live, we will learn and if need be get vaccinated again. If you are worried about long term side effects of the vaccine, ask if the risk of the unknown is worth the possible long-term effects of the disease.
 
And so, we move forward. If you would like to attend an exercise, falls prevention, diabetes, pain, chronic disease, caregiver, depression management, behavioral health, or other healthy living program in the comfort of your own home, go to http://www.eblcprograms.org/evidence-based/map-of-programs/ and call the nearest organization offering programs. If they cannot help, call another organization in your state. Thanks so much to all our program leads who have worked so hard to move programs to virtual delivery.
 
Thanks so much to the wonderful community agencies who continued to offer programs in a very difficult time.
 
Most of all, thanks to all of you who participated in our programs and showed what was possible. Looking forward to seeing you in person or seeing you online. Elders and their wisdom lead the way.

Self-Management Tool Kits - Frequently Ask Questions

cover of Tool Kit

Frequently asked questions about Self-Management Tool Kits for the Chronic Disease, Diabetes, and Pain: 


Q: What is in a Tool Kit? 

A: Learn more about the parts of the Self Management Tool Kits


Q: Are the Tool Kits available in different languages? 

A: The Chronic Disease Self-Management Tool Kit is available in Spanish.

The Diabetes Self-Management Tool Kit is also available in Spanish.


Q: Can you ship a kit to an individual participant? 

A: We can ship everything directly to you or your organization via FedEx Ground. 
 
Or, we can ship complete kits to individual participants. If this is what you require, email us a spreadsheet with names and address. We will send them via US media mail to be delivered in 7-10 business days. Please download our spreadsheet to ensure the names are in a format we can use. 

Unfortunately costs prohibit us shipping to individual participants in Canada.


Q: I already ordered books, can I order materials separately to create tool kits? 

A: If your organization has a supply of some materials, such as books or relaxation CDs, you can purchase the remaining products using this form - https://www.bullpub.com/cdsmp-tool-kit-order-form.html


Q: Are these Tool Kits appropriate for the Diabetes or Pain Self-Management course? 

A: The Tool Kit specifically designed for the Diabetes Self-Management course is now available.

The Tool Kit for the Pain Self-Management course is available.



Q: Some participants don't have CD players? 

A: If you are interested in digital (MP3) options for books and CDs, please email emily@bullpub.com with your questions.

Self-Management Tool Kits

Self-Management Tool Kits

Reach Participants During the COVID-19 Sequestration

Bull Publishing offers chronic disease, diabetes and chronic pain tool kits for participants who are at home. Below are the details for each.
 
 

The Chronic Disease Self-Management Tool Kit includes the following materials and is priced at $46.36 each. It is also available in Spanish.

 
 
 
 
 
 

The Diabetes Self-Management Tool Kit includes the following matierals and is priced at $39.96 each. A Spanish Diabetes Tool Kit is also available.

 
 
 
 
 
 

The Chronic Pain Self-Management Tool Kit includes the following materials and is priced at $38.36 each:

 
 
 
 
 
If your organization has a supply of some materials, such as the book or relaxation CD, you can purchase the remaining products using this form - https://www.bullpub.com/cdsmp-tool-kit-order-form.html.
 
If you are interested in digital (MP3) options for books and CDs, please email Emily@bullpub.com with questions.
 

Shipping 

We can ship everything directly to you. 
 
Or, we can ship complete kits to individual participants. If this is what you require, email us a spreadsheet with names and address. We will send them via US media mail to be delivered in 7-10 business days. Please download our spreadsheet to ensure the names are in a format we can use. 
 
 
Cost prohibits us from shipping kits to individual participants in Canada. 
 

Questions?

Please feel free to email Emily - emily@bullpub.com - with any questions or to place an order.
 

 

Q&A: She teaches people with serious diseases how to help themselves

The Jewish News of Northern California interviewed our author Kate Lorig: 

Q&A: She teaches people with serious diseases how to help themselves

 

  • Excerpt: 

    J: It seems as if the self-management programs have grown organically from the first one you created at Stanford. What is the key to their success?

    Kate Lorig: People that attend like it and feel that they benefit, and we have pretty solid scientific evidence that these programs actually help people … and reduce health care costs. The programs can be given where people work and play in the community — from senior centers to park and recreation facilities.

 

Lorig and her co-authors have just published the new edition of Living a Healthy Life with Chronic Conditions. Learn about the changes to the new edition

Changes to the new 5th Edition of Living a Healthy Life with Chronic Conditions

The new edition of Living a Healthy Life with Chronic Conditions is now ready to ship.

 

Changes in brief:

  • - Every chapter has been completely revised, updated, and carefully edited, often with the help of content specialists when required.

  • - Canadian content is now integrated throughout the book, eliminating the need for separate books. A change in format indicates content that is of particular interest to the Canadian audience.

  • - The book is accompanied by an all-new, topically-organized collection of further readings, useful websites, and other helpful resources organized by topic. The resources list is online at www.bullpub.com/resources.

 

 

 

 

 

Highlights of the changes to this edition: 

Chapter 1: Self-Management: What Is It and How Can You Do It?

  • - New Chronic Conditions Self-Test at the end of Chapter 1 helps readers identify their personal concerns and understand how best to apply the concepts in the book to their own lives.

Chapter 3: Finding Resources

  • - Updated content on using online resources to find the most reliable information.

Chapter 4: Understanding and Managing Common Conditions

  • - All-new Chapter 4 provides essential information about living with and managing the most common chronic illnesses such as lung disease, heart disease, high blood pressure, stroke, and arthritis because across chronic conditions, self-management skills are more common than different. (In previous editions, these discussions were in separate chapters near the end of the book.)

Chapter 5: Understanding and Managing Common Symptoms and Emotions

  • - A new discussion at the end of Chapter 5 on the use and misuse of opioids by Beth Darnall, PhD, includes information about reducing use and tapering opioid medications.

Chapter 9: Freedom and Safety

  • - This new chapter on adaptive devices and creating a safe environment includes practical information about good body mechanics, exercises to reduce injury risks, modifying your home and surroundings, and using assistive technology to make activities easier and safer.

Chapter 10: Healthy Eating

  • - Completely revised and updated, this chapter now includes two helpful appendixes: Healthy Eating Plans for 1,600 and 2,000 Calories, and Food Groups for Meal Planning.

Chapter 13: Managing Your Treatment Decisions and Medications

  • - Now combines two topics that were addressed in separate chapters in past editions: treatment decisions and medications.

Chapter 14: Managing Diabetes

  • - Completely updated by expert contributors from both the US and Canada to reflect current information on monitoring blood glucose, healthy eating, and resources for people with diabetes.

Chapter 15: Working and Living with Chronic Conditions

  • - This new chapters covers work / life balance and managing work, as well as work issues relating to communication, physical activity, and eating well.


Other important things to note: 

  • - You will have an entire year to use the 4th edition books you may already have. Don’t worry about needing to upgrade immediately.
  • - If you have questions about the new edition, sign up for a newsletter for updates or email Emily (emily@bullpub.com) for more information.

Alzheimer’s

lemon Return to the topics list at any time by clicking Index on the left hand menu. 

Websites

 

Alzheimer’s Association | https://www.alz.org 

The Alzheimer's Association is the leading voluntary health organization in Alzheimer's care, support and research. 

 

Arthritis

lemon Return to the topics list at any time by clicking Index on the left hand menu. 

 

Websites

Arthritis Foundation | https://www.arthritis.org/

Official website of The Arthritis Foundation, also available in Spanish includes a blog, resource finder and helpline. 

- Living with Arthritis https://www.arthritis.org/living-with-arthritis/ 

- Walk with Ease Program https://www.arthritis.org/living-with-arthritis/tools-resources/walk-with-ease/ 

 

National Institute of Arthritis, Musculoskeletal and Skin Diseases | https://www.niams.nih.gov/ 

Government agency. Search arthritis, osteoporosis, and other topics:

- https://www.niams.nih.gov/health-topics/arthritis

 

Programs

Fit & Strong! | https://www.fitandstrong.org

- An exercise program for adults with arthritis

 

Print

Shlotzhauer, T. L. (2014). Living with rheumatoid arthritis. Baltimore: Johns Hopkins University Press.

Asthma, Lung Disease & Emphysema

lemon Return to the topics list at any time by clicking Index on the left hand menu. 

 

Websites

Allergy & Asthma Network | https://www.allergyasthmanetwork.org/

The Allergy & Asthma Network Mothers of Asthmatics, a patient advocacy organization, was started by a mother with children who have asthma. Section for patients includes practical easy-to-understand and medically accurate ways to prevent and control symptoms.

 

American Lung Association | https://www.lung.org/

Also available in Spanish, The American Lung Association website provides information on asthma, allergies, and other respiratory illnesses, ways to stop smoking as well as in-depth information on ongoing clinical trials. 

- COPD https://www.lung.org/lung-health-and-diseases/lung-disease-lookup/copd/

 

American Academy of Allergy Asthma & Immunology | https://www.aaaai.org/

The American Academy of Allergy Asthma & Immunology (AAAAI) is one of the nation's largest professional medical specialty organizations. Their website, though mainly for industry, does include a Find an Allergist / Immunologist service. 

 

American Thoracic Society | https://www.thoracic.org

International medical association dedicated to advancing clinical and scientific understanding of pulmonary diseases, critical illnesses and sleep-related breathing disorders.

 

Asthma and Allergy Foundation of America | https://www.aafa.org/

A nonprofit organization founded in 1953, works to develop and implement public policies to improve the quality of life for people with asthma and allergies. This website provides information about triggers, symptoms and treatments as well as a blog and community forum.

 

Asthma Canada | https://asthma.ca/

Asthma Canada provides research, advocacy, education and support. Search Asthma under Get Help for asthma basics, diagnosis, triggers, medication, management and information for parents and caregivers. 

 

Breathe California

 

Centers for Disease Control and Prevention

 

Chest Foundation | https://foundation.chestnet.org/

Champions lung health by supporting clinical research, community service, and patient education.

 

COPD Foundation | https://www.copdfoundation.org/

A nonprofit organization providing educational materials including a video series for patients with chronic lung disease

 

Kaiser Permanente: Sleep Apnea | https://healthy.kaiserpermanente.org/health-wellness/health-encyclopedia/he.sleep-apnea.hw49127?kpSearch=sleep%20apnea 

 

MayoClinic: Emphysema | https://www.mayoclinic.org/diseases-conditions/emphysema/symptoms-causes/syc-20355555 

 

MedicineNet: Emphysema | https://www.medicinenet.com/emphysema_lung_condition/article.htm 

 

MedlinePlus

 

National Emphysema Foundation | http://www.emphysemafoundation.org/

This site is to enable those with emphysema to better cope with and understand the nature of their disease through new research, current treatment initiatives, and innovative ways of coping. 

 

National Heart, Lung, and Blood Institute | https://www.nhlbi.nih.gov/

The National Heart Lung and Blood Institute plans, conducts, and supports research, clinical trials, and observational studies related to the causes, diagnosis, prevention, and treatment of heart, blood vessel, lung, and blood diseases, and sleep disorders. 

 

The Lung Association | https://lung.ca/

The Lung Association is the leading organization in Canada working to promote lung health and prevent and manage lung disease. The website includes many helpful resources including videos on how to use different types of inhalers. 

 

U.S. Department of Health and Human Services: Asthma | http://www.healthfinder.gov/FindServices/SearchContext.aspx?topic=75

 

United States Environmental Protection Agency (EPA): Asthma | http://www.epa.gov/asthma/

 

WebMD: COPD Health Center | https://www.webmd.com/g00/lung/copd/default.htm?i10c.ua=4&i10c.encReferrer= 



Videos

Center for Disease Control and Prevention: Know How To Use Your Asthma Inhaler

https://www.cdc.gov/asthma/inhaler_video/default.htm

 

Mayo Clinic: Dr. Benzo Mindful Breathing Lab | https://www.mayo.edu/research/labs/mindful-breathing/videos 

 

Print 

Fielding, D. L. (2016). The COPD Solution: A Proven 10-week Program for Living and Breathing Better with Chronic Lung Disease (1st ed.). Philadelphia: Da Capo Lifelong Books.

Mahler, Donald A. Breathe Easy: Relieving the Symptoms of Chronic Lung Disease 1st Edition. University Press of New England, 2017

Martin, Jane M (2012). Live Your Life With COPD- 52 Weeks of Health, Happiness and Hope. Infinity Publishing. 

Olle, D. A. (2018). Asthma. Dulles, VA: Mercury Learning and Information.

click here