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Pursed Lip Breathing (from 0:24-1:33) | https://youtu.be/7kpJ0QlRss4
Belly Breathing (from 0:34-1:22) | https://youtu.be/wai-GIYGMeo
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American Cancer Society | https://www.cancer.org/
Website features: news, information on types of cancer, patient services, treatment options, sections on children with cancer and living with cancer, and cancer statistics.
Cancer.Net | https://www.cancer.net/
The official website for the American Society of Clinical Oncology (ASCO) with insights, tips, and inspirational posts on cancer, written by cancer physicians.
Leukemia and Lymphoma Society | https://www.lls.org/
American Cancer Society | cancer.org
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Arthritis Foundation | https://www.arthritis.org/
Official website of The Arthritis Foundation, also available in Spanish includes a blog, resource finder and helpline.
- Living with Arthritis https://www.arthritis.org/living-with-arthritis/
- Walk with Ease Program https://www.arthritis.org/living-with-arthritis/tools-resources/walk-with-ease/
National Institute of Arthritis, Musculoskeletal and Skin Diseases | https://www.niams.nih.gov/
Government agency. Search arthritis, osteoporosis, and other topics:
- https://www.niams.nih.gov/health-topics/arthritis
Fit & Strong! | https://www.fitandstrong.org
- An exercise program for adults with arthritis
Shlotzhauer, T. L. (2014). Living with rheumatoid arthritis. Baltimore: Johns Hopkins University Press.
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Allergy & Asthma Network | https://www.allergyasthmanetwork.org/
The Allergy & Asthma Network Mothers of Asthmatics, a patient advocacy organization, was started by a mother with children who have asthma. Section for patients includes practical easy-to-understand and medically accurate ways to prevent and control symptoms.
American Lung Association | https://www.lung.org/
Also available in Spanish, The American Lung Association website provides information on asthma, allergies, and other respiratory illnesses, ways to stop smoking as well as in-depth information on ongoing clinical trials.
- COPD https://www.lung.org/lung-health-and-diseases/lung-disease-lookup/copd/
American Academy of Allergy Asthma & Immunology | https://www.aaaai.org/
The American Academy of Allergy Asthma & Immunology (AAAAI) is one of the nation's largest professional medical specialty organizations. Their website, though mainly for industry, does include a Find an Allergist / Immunologist service.
American Thoracic Society | https://www.thoracic.org
International medical association dedicated to advancing clinical and scientific understanding of pulmonary diseases, critical illnesses and sleep-related breathing disorders.
- Patient Resources https://www.thoracic.org/patients/patient-resources/
Asthma and Allergy Foundation of America | https://www.aafa.org/
A nonprofit organization founded in 1953, works to develop and implement public policies to improve the quality of life for people with asthma and allergies. This website provides information about triggers, symptoms and treatments as well as a blog and community forum.
Asthma Canada | https://asthma.ca/
Asthma Canada provides research, advocacy, education and support. Search Asthma under Get Help for asthma basics, diagnosis, triggers, medication, management and information for parents and caregivers.
Breathe California
- Resources https://www.lungsrus.org/resources/
Centers for Disease Control and Prevention
- COPD https://www.cdc.gov/copd/index.html
- Heart Disease https://www.cdc.gov/heartdisease/
- Stroke https://www.cdc.gov/stroke/
Chest Foundation | https://foundation.chestnet.org/
Champions lung health by supporting clinical research, community service, and patient education.
- Chronic Obstructive Pulmonary Disease https://www.thoracic.org/patients/patient-resources/resources/copd-intro.pdf
- Emphysema https://foundation.chestnet.org/patient-education-resources/emphysema/
- Patient Education Resources: https://foundation.chestnet.org/patient-education-resources/
COPD Foundation | https://www.copdfoundation.org/
A nonprofit organization providing educational materials including a video series for patients with chronic lung disease
Kaiser Permanente: Sleep Apnea | https://healthy.kaiserpermanente.org/health-wellness/health-encyclopedia/he.sleep-apnea.hw49127?kpSearch=sleep%20apnea
MayoClinic: Emphysema | https://www.mayoclinic.org/diseases-conditions/emphysema/symptoms-causes/syc-20355555
MedicineNet: Emphysema | https://www.medicinenet.com/emphysema_lung_condition/article.htm
MedlinePlus
- COPD https://medlineplus.gov/ency/article/000091.htm
- Emphysema https://medlineplus.gov/emphysema.html
- Sleep Apnea https://medlineplus.gov/sleepapnea.html
National Emphysema Foundation | http://www.emphysemafoundation.org/
This site is to enable those with emphysema to better cope with and understand the nature of their disease through new research, current treatment initiatives, and innovative ways of coping.
National Heart, Lung, and Blood Institute | https://www.nhlbi.nih.gov/
The National Heart Lung and Blood Institute plans, conducts, and supports research, clinical trials, and observational studies related to the causes, diagnosis, prevention, and treatment of heart, blood vessel, lung, and blood diseases, and sleep disorders.
- The Education and Awareness section of the website Includes various resources and publications for patients https://www.nhlbi.nih.gov/health-topics/education-and-awareness
- Asthma http://www.nhlbi.nih.gov/health/health-topics/topics/asthma/
- COPD https://www.nhlbi.nih.gov/health-topics/copd
- Sleep Apnea https://www.nhlbi.nih.gov/health-topics/sleep-apnea
The Lung Association | https://lung.ca/
The Lung Association is the leading organization in Canada working to promote lung health and prevent and manage lung disease. The website includes many helpful resources including videos on how to use different types of inhalers.
- Get Help: https://www.lung.ca/lung-health/get-help
National Heart, Lung, and Blood Institute, National Institutes of Health, Asthma | NHLBI, NIH | https://www.nhlbi.nih.gov/health-topics/asthma
United States Environmental Protection Agency (EPA): Asthma | http://www.epa.gov/asthma/
WebMD: COPD Health Center | https://www.webmd.com/g00/lung/copd/default.htm?i10c.ua=4&i10c.encReferrer=
Center for Disease Control and Prevention: Know How To Use Your Asthma Inhaler
https://www.cdc.gov/asthma/inhaler_video/default.htm
Mayo Clinic: Dr. Benzo Mindful Breathing Lab | https://www.mayo.edu/research/labs/mindful-breathing/videos
Fielding, D. L. (2016). The COPD Solution: A Proven 10-week Program for Living and Breathing Better with Chronic Lung Disease (1st ed.). Philadelphia: Da Capo Lifelong Books.
Mahler, Donald A. Breathe Easy: Relieving the Symptoms of Chronic Lung Disease 1st Edition. University Press of New England, 2017
Martin, Jane M (2012). Live Your Life With COPD- 52 Weeks of Health, Happiness and Hope. Infinity Publishing.
Olle, D. A. (2018). Asthma. Dulles, VA: Mercury Learning and Information.
Return to the topics list at any time by clicking Resources on the left-hand menu.
Alzheimer’s Association | https://www.alz.org
The Alzheimer's Association is the leading voluntary health organization in Alzheimer's care, support and research.
Return to the topics list at any time by clicking Resources on the left-hand menu.
American Association for Retired Persons | https://www.aarp.org
American Bar Association: Health Care Decision Making | http://www.americanbar.org/groups/law_aging/resources/health_care_decision_making.html
National Council on Aging: Benefits Check Up | https://www.benefitscheckup.org
Caring.com | https://www.caring.com
Information and support geared towards seniors.
Five Wishes: Advanced Care Planning for You and Your Loved Ones | https://fivewishes.org/five-wishes/individuals-families/individuals-and-families
My Life In A Box: A Life Organizer | https://mylifeinabox.com
National Center of Law and Elder Rights | https://ncler.acl.gov
Formerly the National Legal Resource Center
National Council on Aging | https://www.ncoa.org
National Hospice and Palliative Care Organization: Patients and Caregivers | https://www.nhpco.org/patients-and-caregivers/
National POLST Paradigm | https://polst.org
Encourages patients and their health care professionals to talk about what patients want at the end of life. The patient and his/her health care professional make informed, shared decisions about treatments and complete a POLST form, which is a portable medical order that emergency personnel can follow if the patient has a medical emergency and can't speak for himself/herself.
National Resource Center on Psychiatric Advance Directives | https://www.nrc-pad.org/
A psychiatric advance directive (PAD) is a legal document that documents a person’s preferences for future mental health treatment, and allows the appointment of a health proxy to interpret those preferences during a crisis. PADs are used when a person becomes unable to make decisions during a mental health crisis.
U.S. Department of Housing and Urban Development: Home equity conversion mortgages for seniors | https://www.hud.gov/program_offices/housing/sfh/hecm/hecmhome
U.S. Department of Veterans Affairs: Directory of Veterans Service Organizations | https://www.va.gov/vso/
Cullen, M., Irving, S. (2018). Shae Irving. Get It Together: Organize Your Records So Your Family Won’t Have To (Eighth edition). Berkeley, CA: Nolo.
Kübler-Ross, E. (2014). On Death and Dying. New York: Simon & Schuster.
Rosen, H. (2015). My Family Record Book: The Easy Way to Organize Personal Information, Financial Plans, and Final Wished for Seniors, Caregivers, Estate Executors, etc. Rosen Books.
Speicher, J. H. (2019). Before and After: A practical guide for what to do and not to do before and after a loved one dies. Lafayette, CA: Big Hat Press.
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The McKnight Brain Research Foundation
Return to the topics list at any time by clicking Resources on the left-hand menu.
Toolkit for Managing Persistent Pain | https://www.act-center.org/
The Toolkit for Managing Persistent Pain was written by and for people living with chronic pain. Many people using this toolkit work with their health care teams to manage opioid treatment. Some are using other medicines or alternative treatments to manage their pain. This toolkit talks about both and is intended as a useful resource for everyone experiencing persistent pain, no matter what treatment methods they are using or where they are in their pain journey.
American Chronic Pain Association | https://www.acpanow.com/
Peer support and education in pain management skills to people with pain, family and friends, and health care professionals. Use the Resources tab in the main menu.
Pacing and Planning
The Pain Toolkit | https://www.paintoolkit.org
A pain self-management resource based on the Pain Toolkit, a simple information booklet by Pete Moore.
Butler, D., Moseley, G. (2013) Explain Pain. Noigroup Publications.
Darnall, B. (2014). Less Pain, Fewer Pills: Avoid the Dangers of Prescription Opioids and Gain Control Over Chronic Pain. Boulder, CO: Bull Publishing Company.
LeFort, S. M., Webster, L., Lorig, K., Holman, H., Sobel, D. S., Laurent, D., … Minor, M. A. (2021). Living a Healthy Life with Chronic Pain, 2nd Edition. Boulder, CO: Bull Publishing Company.
Understanding pain & what to do about it in less than 5 minutes | https://www.youtube.com/watch?v=cLWntMDgFcs&t=129s
- Joint Pain Education Project video from the Defense & Veterans Center for Integrative Pain Management (DVCIPM) to learn more about chronic pain management.
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National Institute on Drug Abuse: Opioids | https://www.drugabuse.gov/drugs-abuse/opioids
Mayo Clinic: How Opioid Addiction Occurs | https://www.mayoclinic.org/diseases-conditions/prescription-drug-abuse/in-depth/how-opioid-addiction-occurs/art-2036037
US Department of Health and Human Services: What are Opioids? | https://www.hhs.gov/opioids/prevention/index.html
Darnall, B. (2014). Less Pain, Fewer Pills: Avoid the Dangers of Prescription Opioids and Gain Gontrol Over Chronic Pain. Bull Publishing Company.
Darnall, B. (2016). The Opioid-Free Pain Relief Kit: 10 Simple Steps to Ease Your Pain. Bull Publishing Company.
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ACL (Administration for Community Living) Assistive Technology: Tools to Improve the Everyday | https://acl.gov/AT
- This page contains links to Assistive Technology programs in your state and provides information on the right type of AT for your needs, financial assistance, and insurance.
Multiple Sclerosis Society: Guide to Medical & Assistive Equipment Resources
Medical & Assistive Equipment | National Multiple Sclerosis Society (nationalmssociety.org)
Multiple Sclerosis Society: Assistance for Adaptive Equipment
Assistance for Adaptive Equipment | National Multiple Sclerosis Society (nationalmssociety.org)
Multiple Sclerosis Society: How to Choose the Mobility Device that is Right for You (.pdf)
Brochure-How-to-Choose-the-Mobility-Device-that-is-Right-for-You.pdf (azureedge.net)
Multiple Sclerosis Society: All Brochures on a variety of topics in English and Spanish
All Brochures | National Multiple Sclerosis Society (nationalmssociety.org)
Christopher and Dana Reeve Foundation: Home Modification | https://www.christopherreeve.org/living-with-paralysis/home-travel/home-modification
Eldercare Locator: Assistive Technology | https://eldercare.acl.gov/Public/Resources/Factsheets/Assistive_Technology.aspx
NICHD Information Resource Center: What are some types of assistive devices and how are they used? | https://www.nichd.nih.gov/health/topics/rehabtech/conditioninfo/device
MedlinePlus
Mayo Clinic: Tips for Choosing and Using Canes | https://www.mayoclinic.org/healthy-lifestyle/healthy-aging/multimedia/canes/sls-20077060?s=6
National Institute on Aging: Home Safety and Alcheimer’s Disease | https://www.nia.nih.gov/health/home-safety-and-alzheimers-disease
National Institute on Deafness and Other Communication Disorders (NIDCD) | https://www.nidcd.nih.gov/health/assistive-devices-people-hearing-voice-speech-or-language-disorders
- Assistive Devices for People with Hearing, Voice, Speech, or Language Disorders
Clinic Excellence Commission (Australia): Falls Prevention - Safe use of Mobility Aids - Walking stick | https://www.youtube.com/watch?v=4RB7OZ5KVyk
National Center on Health, Physical Activity and Disability: How to Choose a Wheelchair | https://www.youtube.com/watch?v=Xc1aDJgdzzk&list=PLwMObYmlSHaM3ILerLzVBh5T11XygRVnS&index=2&t=0s
A Family and Caregivers Guide to Home Safety for the Disabled | https://www.safehome.org/resources/family-caregivers-guide-safety-disabled/
Muscular Dystrophy Association: Everyday Life with ALS A Practical Guide | https://www.mda.org/sites/default/files/publications/Everyday_Life_with_ALS_P-532.pdf
* From 2005. Might be a little outdated
