Resources

Welcome

These resources are designed to accompany Living a Healthy Life with Chronic Conditions, 5th Edition.

This list includes suggested further readings, useful websites, and other helpful resources. It's compiled by the authors of the book and maintained by the publisher.

photo of cover

Getting Started - Index

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Other things you might need

Visit the Self-Management Resource Centre | Millions of adults live with one or more chronic health conditions. Our programs help people and their caregivers manage their symptoms, improve their quality of life, and reduce healthcare costs.

 

Find a self-manangement program or workshop near you | This searchable map allows you to find programs or workshops by zip code, country, or you can filter by program.

 

Report a broken link  | If you would like to report a broken link or make a suggestion, please contact us

Alzheimer’s

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Websites

 

Alzheimer’s Association | https://www.alz.org 

The Alzheimer's Association is the leading voluntary health organization in Alzheimer's care, support and research. 

 

Arthritis

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Websites

Arthritis Foundation | https://www.arthritis.org/

Official website of The Arthritis Foundation, also available in Spanish includes a blog, resource finder and helpline. 

- Living with Arthritis https://www.arthritis.org/living-with-arthritis/ 

- Walk with Ease Program https://www.arthritis.org/living-with-arthritis/tools-resources/walk-with-ease/ 

 

National Institute of Arthritis, Musculoskeletal and Skin Diseases | https://www.niams.nih.gov/ 

Government agency. Search arthritis, osteoporosis, and other topics:

- https://www.niams.nih.gov/health-topics/arthritis

 

Programs

Fit & Strong! | https://www.fitandstrong.org

- An exercise program for adults with arthritis

 

Print

Shlotzhauer, T. L. (2014). Living with rheumatoid arthritis. Baltimore: Johns Hopkins University Press.

Asthma, Lung Disease & Emphysema

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Websites

Allergy & Asthma Network | https://www.allergyasthmanetwork.org/

The Allergy & Asthma Network Mothers of Asthmatics, a patient advocacy organization, was started by a mother with children who have asthma. Section for patients includes practical easy-to-understand and medically accurate ways to prevent and control symptoms.

 

American Lung Association | https://www.lung.org/

Also available in Spanish, The American Lung Association website provides information on asthma, allergies, and other respiratory illnesses, ways to stop smoking as well as in-depth information on ongoing clinical trials. 

- COPD https://www.lung.org/lung-health-and-diseases/lung-disease-lookup/copd/

 

American Academy of Allergy Asthma & Immunology | https://www.aaaai.org/

The American Academy of Allergy Asthma & Immunology (AAAAI) is one of the nation's largest professional medical specialty organizations. Their website, though mainly for industry, does include a Find an Allergist / Immunologist service. 

 

American Thoracic Society | https://www.thoracic.org

International medical association dedicated to advancing clinical and scientific understanding of pulmonary diseases, critical illnesses and sleep-related breathing disorders.

 

Asthma and Allergy Foundation of America | https://www.aafa.org/

A nonprofit organization founded in 1953, works to develop and implement public policies to improve the quality of life for people with asthma and allergies. This website provides information about triggers, symptoms and treatments as well as a blog and community forum.

 

Asthma Canada | https://asthma.ca/

Asthma Canada provides research, advocacy, education and support. Search Asthma under Get Help for asthma basics, diagnosis, triggers, medication, management and information for parents and caregivers. 

 

Breathe California

 

Centers for Disease Control and Prevention

 

Chest Foundation | https://foundation.chestnet.org/

Champions lung health by supporting clinical research, community service, and patient education.

 

COPD Foundation | https://www.copdfoundation.org/

A nonprofit organization providing educational materials including a video series for patients with chronic lung disease

 

Kaiser Permanente: Sleep Apnea | https://healthy.kaiserpermanente.org/health-wellness/health-encyclopedia/he.sleep-apnea.hw49127?kpSearch=sleep%20apnea 

 

MayoClinic: Emphysema | https://www.mayoclinic.org/diseases-conditions/emphysema/symptoms-causes/syc-20355555 

 

MedicineNet: Emphysema | https://www.medicinenet.com/emphysema_lung_condition/article.htm 

 

MedlinePlus

 

National Emphysema Foundation | http://www.emphysemafoundation.org/

This site is to enable those with emphysema to better cope with and understand the nature of their disease through new research, current treatment initiatives, and innovative ways of coping. 

 

National Heart, Lung, and Blood Institute | https://www.nhlbi.nih.gov/

The National Heart Lung and Blood Institute plans, conducts, and supports research, clinical trials, and observational studies related to the causes, diagnosis, prevention, and treatment of heart, blood vessel, lung, and blood diseases, and sleep disorders. 

 

The Lung Association | https://lung.ca/

The Lung Association is the leading organization in Canada working to promote lung health and prevent and manage lung disease. The website includes many helpful resources including videos on how to use different types of inhalers. 

 

U.S. Department of Health and Human Services: Asthma | http://www.healthfinder.gov/FindServices/SearchContext.aspx?topic=75

 

United States Environmental Protection Agency (EPA): Asthma | http://www.epa.gov/asthma/

 

WebMD: COPD Health Center | https://www.webmd.com/g00/lung/copd/default.htm?i10c.ua=4&i10c.encReferrer= 



Videos

Center for Disease Control and Prevention: Know How To Use Your Asthma Inhaler

https://www.cdc.gov/asthma/inhaler_video/default.htm

 

Mayo Clinic: Dr. Benzo Mindful Breathing Lab | https://www.mayo.edu/research/labs/mindful-breathing/videos 

 

Print 

Fielding, D. L. (2016). The COPD Solution: A Proven 10-week Program for Living and Breathing Better with Chronic Lung Disease (1st ed.). Philadelphia: Da Capo Lifelong Books.

Mahler, Donald A. Breathe Easy: Relieving the Symptoms of Chronic Lung Disease 1st Edition. University Press of New England, 2017

Martin, Jane M (2012). Live Your Life With COPD- 52 Weeks of Health, Happiness and Hope. Infinity Publishing. 

Olle, D. A. (2018). Asthma. Dulles, VA: Mercury Learning and Information.

Cancer

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Websites

 

American Cancer Society | https://www.cancer.org/

Website features: news, information on types of cancer, patient services, treatment options, sections on children with cancer and living with cancer, and cancer statistics.

 

Cancer.Net | https://www.cancer.net/

The official website for the American Society of Clinical Oncology (ASCO) with insights, tips, and inspirational posts on cancer, written by cancer physicians.

 

Leukemia and Lymphoma Society | https://www.lls.org/

Communicating with Family, Friends & Health Professionals

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Websites

Family Caregiver Alliance: Pathways to Effective Communication for Healthcare Providers and Caregivers | https://www.caregiver.org/pathways-effective-communication-healthcare-providers-and-caregivers 

 

Print

Brower, N., MFHD, & Darrington, J., MS. (2012, July). Effective Communication Skills: Resolving Conflict [PDF]. Logan: Utah State University.

- Link to PDF https://extension.usu.edu/relationships/ou-files/effectivecommunicationskills.pdf

Depression

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Print

Burns, D. D. (1999). Feeling good: The new mood therapy. New York, NY: Collins, an imprint of HarperCollins.

 

Lewinsohn, P. M. (1992). Control your depression. New York, NY: Simon and Schuster.

Diabetes

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Websites

American Diabetes Association | http://diabetes.org/

This site contains a variety of information about diabetes from nutrition to research and advocacy issues like insulin affordability. Website also features: news, risk test, statistics, recipes, and is available in Spanish.

 

Diabetes Food Hub | https://www.diabetesfoodhub.org/

Website by the American Diabetes Association allows you to browse recipes with pictures, get nutritional information and create meal plans and grocery lists. 

 

Diabetes Forecast: The Healthy Living Magazine | http://www.diabetesforecast.org/

Published by the American Diabetes Association, available online.

 

Diabetes Sisters | https://diabetessisters.org

A site for women living with diabetes that offers expert advice as well as a forum for women with diabetes to communicate with each other.

 

John Hopkins Patient Guide to Diabetes | http://hopkinsdiabetesinfo.org/

Includes a variety of information and videos about diabetes, research studies, patient stories and a nutrition blog.

 

National Diabetes Education Program | https://www.cdc.gov/diabetes/ndep/index.html

Website features: information for minorities, Spanish-language and Asian-American information, tips on how to control and prevent diabetes, resources for children and adolescents. NDEP materials are provided through a joint effort of the Centers for Disease Control and Prevention and the National Institutes of Health.

 

Prediabetes | https://doihaveprediabetes.org/

A website by the Centers for Disease Control and Prevention, the American Medical Association, and the Ad Council dedicated to reducing diabetes risk with a self-screening tool for prediabetes and easy to read tips for increasing exercise, healthy eating, and managing weight to prevent diabetes.

Exercise & Physical Activity

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Programs

Silver Sneakers | http://www.silversneakers.com 

- This program is taught in many communities by trained leaders. Some insurance plans provide it as a benefit.

 

Physical activity guidelines

Australia | https://www.health.gov.au/internet/main/publishing.nsf/content/health-pubhlth-strateg-phys-act-guidelines

Canada | https://csepguidelines.ca  

United States | https://health.gov/paguidelines/

 

Websites

Enhance Fitness | https://projectenhance.org/enhancefitness/

Low-cost, evidence-based group exercise and falls prevention program to help older adults at all levels of fitness become more active, energized, and empowered to sustain independent lives. 

 

Evidence-based Leadership Council | http://www.eblcprograms.org

Proven evidence-based programs (EBPs) in the following categories: chronic disease and medication management, depression, falls management and physical activity. 

 

Go4Life | https://go4life.nia.nih.gov/

Go4Life is an exercise and physical activity campaign from the National Institute on Aging at NIH, designed to help older adults fit exercise and physical activity into their daily life.

 

National Center on Health, Physical Activity and Disability | https://www.nchpad.org/

NCHPAD is the premier resource for information on physical activity, health promotion, and disability, serving persons with physical, sensory and cognitive disability across the lifespan. NCHPAD’s website features a variety of resources and services which can benefit all ages and populations and can be found online.

 

National Institute on Aging: Exercise and Physical Activity | https://www.nia.nih.gov/health/exercise-physical-activity 

 

WebMD: The 7 Minute Workout | https://www.webmd.com/fitness-exercise/ss/the-7-minute-workout-slideshow 

 

Videos

Canadian Lung Association: Exercise and COPD | https://youtu.be/DFemC5giG1Y 

 

Flint Rehabilitation Devices, LLC: Core Exercises for Stroke Patients to Improve Balance and Walking | https://youtu.be/dGBqTLtdVuA 

 

Kaiser Permanente Thrive: Seated Upper Body Exercise | https://youtu.be/R6Nr-VaFcqM 

 

Multiple Sclerosis Association of America: Introduction to Multiple Sclerosis Aquatic Fitness | https://youtu.be/PmDArJJjG4c 

 

Sit and Be Fit | https://www.sitandbefit.org/

Recommended video workouts for those with various conditions including: osteoporosis, diabetes, COPD, neuropathy, arthritis, parkinsons and other conditions. This program offers the classes through public television, streaming, YouTube, and DVDs.

 

Silver Sneakers: 7-Minute Yoga Workout for Older Adults | https://youtu.be/NDLad2vOHkU

 

Audiobooks

Exercises for Chronic Conditions | https://www.bullpub.com/exercises-for-chronic-conditions.html

Audio CD self-management resource 

 

Moving Easy Program | https://www.bullpub.com/catalog-moving-easy.html

Audio CD that guides you through gentle exercise sessions. The recording is also available as a downloadable MP3. 

 

Videos

DocMikeEvans: 23 and 1/2 hours: What is the single best thing we can do for our health?  | https://www.youtube.com/watch?v=aUaInS6HIGo 

 

Dr. Michelle Segar: No Sweat: Lasting Motivation to Exercise | https://www.youtube.com/watch?v=LoNFjf9ltMo 

 

Print

Segar, Michelle: No Sweat: How the Simple Science of Motivation can Bring You a Lifetime of Fitness, 2015. Also online resources: https://michellesegar.com