Post from Kate Lorig: It is a new year with new hope. A time to look back and forward.
- By Claire Cameron
- Jan 11, 2021
This post was first published on the Evidence-Based Leadership Collaborative website.
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Kate Lorig, DrPH
This post was first published on the Evidence-Based Leadership Collaborative website.
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Kate Lorig, DrPH
Posted in Living a Healthy Life with Chronic Conditions and News
The Jewish News of Northern California interviewed our author Kate Lorig:
Q&A: She teaches people with serious diseases how to help themselves
Lorig and her co-authors have just published the new edition of Living a Healthy Life with Chronic Conditions. Learn about the changes to the new edition.
Posted in New Releases, News, Our Authors and Our Books
The new edition of Living a Healthy Life with Chronic Conditions is now ready to ship.
Chapter 1: Self-Management: What Is It and How Can You Do It?
Chapter 3: Finding Resources
Chapter 4: Understanding and Managing Common Conditions
Chapter 5: Understanding and Managing Common Symptoms and Emotions
Chapter 9: Freedom and Safety
Chapter 10: Healthy Eating
Chapter 13: Managing Your Treatment Decisions and Medications
Chapter 14: Managing Diabetes
Chapter 15: Working and Living with Chronic Conditions
Posted in Living a Healthy Life with Chronic Conditions and New Releases
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Alzheimer’s Association | https://www.alz.org
The Alzheimer's Association is the leading voluntary health organization in Alzheimer's care, support and research.
Posted in Resources and Alzheimer’s
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Allergy & Asthma Network | https://www.allergyasthmanetwork.org/
The Allergy & Asthma Network Mothers of Asthmatics, a patient advocacy organization, was started by a mother with children who have asthma. Section for patients includes practical easy-to-understand and medically accurate ways to prevent and control symptoms.
American Lung Association | https://www.lung.org/
Also available in Spanish, The American Lung Association website provides information on asthma, allergies, and other respiratory illnesses, ways to stop smoking as well as in-depth information on ongoing clinical trials.
- COPD https://www.lung.org/lung-health-and-diseases/lung-disease-lookup/copd/
American Academy of Allergy Asthma & Immunology | https://www.aaaai.org/
The American Academy of Allergy Asthma & Immunology (AAAAI) is one of the nation's largest professional medical specialty organizations. Their website, though mainly for industry, does include a Find an Allergist / Immunologist service.
American Thoracic Society | https://www.thoracic.org
International medical association dedicated to advancing clinical and scientific understanding of pulmonary diseases, critical illnesses and sleep-related breathing disorders.
- Patient Resources https://www.thoracic.org/patients/patient-resources/
Asthma and Allergy Foundation of America | https://www.aafa.org/
A nonprofit organization founded in 1953, works to develop and implement public policies to improve the quality of life for people with asthma and allergies. This website provides information about triggers, symptoms and treatments as well as a blog and community forum.
Asthma Canada | https://asthma.ca/
Asthma Canada provides research, advocacy, education and support. Search Asthma under Get Help for asthma basics, diagnosis, triggers, medication, management and information for parents and caregivers.
Breathe California
- Resources https://www.lungsrus.org/resources/
Centers for Disease Control and Prevention
- Heart Disease https://www.cdc.gov/heartdisease/
- Stroke https://www.cdc.gov/stroke/
Chest Foundation | https://foundation.chestnet.org/
Champions lung health by supporting clinical research, community service, and patient education.
- Chronic Obstructive Pulmonary Disease https://www.thoracic.org/patients/patient-resources/resources/copd-intro.pdf
- Emphysema https://foundation.chestnet.org/patient-education-resources/emphysema/
- Patient Education Resources: https://foundation.chestnet.org/patient-education-resources/
COPD Foundation | https://www.copdfoundation.org/
A nonprofit organization providing educational materials including a video series for patients with chronic lung disease
Kaiser Permanente: Sleep Apnea | https://healthy.kaiserpermanente.org/health-wellness/health-encyclopedia/he.sleep-apnea.hw49127?kpSearch=sleep%20apnea
MayoClinic: Emphysema | https://www.mayoclinic.org/diseases-conditions/emphysema/symptoms-causes/syc-20355555
MedicineNet: Emphysema | https://www.medicinenet.com/emphysema_lung_condition/article.htm
MedlinePlus
- Emphysema https://medlineplus.gov/emphysema.html
- Sleep Apnea https://medlineplus.gov/sleepapnea.html
National Emphysema Foundation | http://www.emphysemafoundation.org/
This site is to enable those with emphysema to better cope with and understand the nature of their disease through new research, current treatment initiatives, and innovative ways of coping.
National Heart, Lung, and Blood Institute | https://www.nhlbi.nih.gov/
The National Heart Lung and Blood Institute plans, conducts, and supports research, clinical trials, and observational studies related to the causes, diagnosis, prevention, and treatment of heart, blood vessel, lung, and blood diseases, and sleep disorders.
- The Education and Awareness section of the website Includes various resources and publications for patients https://www.nhlbi.nih.gov/health-topics/education-and-awareness
- Asthma http://www.nhlbi.nih.gov/health/health-topics/topics/asthma/
- Sleep Apnea https://www.nhlbi.nih.gov/health-topics/sleep-apnea
The Lung Association | https://lung.ca/
The Lung Association is the leading organization in Canada working to promote lung health and prevent and manage lung disease. The website includes many helpful resources including videos on how to use different types of inhalers.
- Get Help: https://www.lung.ca/lung-health/get-help
National Heart, Lung, and Blood Institute, National Institutes of Health, Asthma | NHLBI, NIH | https://www.nhlbi.nih.gov/health-topics/asthma
United States Environmental Protection Agency (EPA): Asthma | http://www.epa.gov/asthma/
WebMD: COPD Health Center | https://www.webmd.com/g00/lung/copd/default.htm?i10c.ua=4&i10c.encReferrer=
Center for Disease Control and Prevention: Know How To Use Your Asthma Inhaler
https://www.cdc.gov/asthma/inhaler_video/default.htm
Mayo Clinic: Dr. Benzo Mindful Breathing Lab | https://www.mayo.edu/research/labs/mindful-breathing/videos
Fielding, D. L. (2016). The COPD Solution: A Proven 10-week Program for Living and Breathing Better with Chronic Lung Disease (1st ed.). Philadelphia: Da Capo Lifelong Books.
Mahler, Donald A. Breathe Easy: Relieving the Symptoms of Chronic Lung Disease 1st Edition. University Press of New England, 2017
Martin, Jane M (2012). Live Your Life With COPD- 52 Weeks of Health, Happiness and Hope. Infinity Publishing.
Olle, D. A. (2018). Asthma. Dulles, VA: Mercury Learning and Information.
Posted in Resources and Asthma, Lung Disease & Emphysema
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Zen Habits by Leo Babauta | https://zenhabits.net/about/
Tiny Habits: The Small Changes that Change Everything by BJ Fogg, Houghton Mifflin Harcourt, 2019.
Also available as an online program | https://www.tinyhabits.com/
Posted in Resources and Behavior Change For Self-Managers & Action Planning
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American Cancer Society | https://www.cancer.org/
Website features: news, information on types of cancer, patient services, treatment options, sections on children with cancer and living with cancer, and cancer statistics.
Cancer.Net | https://www.cancer.net/
The official website for the American Society of Clinical Oncology (ASCO) with insights, tips, and inspirational posts on cancer, written by cancer physicians.
Leukemia and Lymphoma Society | https://www.lls.org/
American Cancer Society | cancer.org
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Family Caregiver Alliance: Pathways to Effective Communication for Healthcare Providers and Caregivers | https://www.caregiver.org/pathways-effective-communication-healthcare-providers-and-caregivers
Links to PDFs
- "Effective Communication Skills: Resolving Conflicts" by Naomi Brower and Jana Darrington (usu.edu)
Posted in Resources and Communicating with Family, Friends & Health Professionals
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Burns, D. D. (1999). Feeling good: The new mood therapy. New York, NY: Collins, an imprint of HarperCollins.
Lewinsohn, P. M. (1992). Control your depression. New York, NY: Simon and Schuster.
Posted in Resources and Depression
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American Diabetes Association | http://diabetes.org/
This site contains a variety of information about diabetes from nutrition to research and advocacy issues like insulin affordability. Website also features: news, risk test, statistics, recipes, and is available in Spanish.
Diabetes Food Hub | https://www.diabetesfoodhub.org/
Website by the American Diabetes Association allows you to browse recipes with pictures, get nutritional information and create meal plans and grocery lists.
Diabetes Forecast: The Healthy Living Magazine | http://www.diabetesforecast.org/
Published by the American Diabetes Association, available online.
Diabetes Sisters | https://diabetessisters.org
A site for women living with diabetes that offers expert advice as well as a forum for women with diabetes to communicate with each other.
John Hopkins Patient Guide to Diabetes | http://hopkinsdiabetesinfo.org/
Includes a variety of information and videos about diabetes, research studies, patient stories and a nutrition blog.
National Diabetes Education Program | https://www.cdc.gov/diabetes/ndep/index.html
Website features: information for minorities, Spanish-language and Asian-American information, tips on how to control and prevent diabetes, resources for children and adolescents. NDEP materials are provided through a joint effort of the Centers for Disease Control and Prevention and the National Institutes of Health.
Prediabetes | https://doihaveprediabetes.org/
A website by the Centers for Disease Control and Prevention, the American Medical Association, and the Ad Council dedicated to reducing diabetes risk with a self-screening tool for prediabetes and easy to read tips for increasing exercise, healthy eating, and managing weight to prevent diabetes.