Claire Cameron

Opioids

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Website

National Institute on Drug Abuse: Opioids | https://nida.nih.gov/research-topics/opioids

 

Mayo Clinic: How Opioid Addiction Occurs | https://www.mayoclinic.org/diseases-conditions/prescription-drug-abuse/in-depth/how-opioid-addiction-occurs/art-2036037

 

US Department of Health and Human Services: What are Opioids? | https://www.hhs.gov/opioids/prevention/index.html

 

Print

Darnall, B. (2014). Less Pain, Fewer Pills: Avoid the Dangers of Prescription Opioids and Gain Gontrol Over Chronic Pain. Bull Publishing Company.

Darnall, B. (2016). The Opioid-Free Pain Relief Kit: 10 Simple Steps to Ease Your Pain. Bull Publishing Company. 

 

 

Mobility Aids / Special Equipment

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Websites

ACL (Administration for Community Living) Assistive Technology: Tools to Improve the Everyday | https://acl.gov/AT

- This page contains links to Assistive Technology programs in your state and provides information on the right type of AT for your needs, financial assistance, and insurance.

 

Multiple Sclerosis Society: Guide to Medical & Assistive Equipment Resources

Medical & Assistive Equipment | National Multiple Sclerosis Society (nationalmssociety.org)

Multiple Sclerosis Society: Assistance for Adaptive Equipment

Assistance for Adaptive Equipment | National Multiple Sclerosis Society (nationalmssociety.org)

 

Multiple Sclerosis Society: How to Choose the Mobility Device that is Right for You (.pdf)

Brochure-How-to-Choose-the-Mobility-Device-that-is-Right-for-You.pdf (azureedge.net)

 

Multiple Sclerosis Society: All Brochures on a variety of topics in English and Spanish

All Brochures | National Multiple Sclerosis Society (nationalmssociety.org)

 

Christopher and Dana Reeve Foundation: Home Modification | https://www.christopherreeve.org/living-with-paralysis/home-travel/home-modification

 

Eldercare Locator: Assistive Technology | https://eldercare.acl.gov/Public/Resources/Factsheets/Assistive_Technology.aspx

 

NICHD Information Resource Center: What are some types of assistive devices and how are they used? | https://www.nichd.nih.gov/health/topics/rehabtech/conditioninfo/device

 

MedlinePlus

 

Mayo Clinic: Tips for Choosing and Using Canes | https://www.mayoclinic.org/healthy-lifestyle/healthy-aging/multimedia/canes/sls-20077060?s=6

 

National Institute on Aging: Home Safety and Alcheimer’s Disease | https://www.nia.nih.gov/health/home-safety-and-alzheimers-disease

 

National Institute on Deafness and Other Communication Disorders (NIDCD) | https://www.nidcd.nih.gov/health/assistive-devices-people-hearing-voice-speech-or-language-disorders 

- Assistive Devices for People with Hearing, Voice, Speech, or Language Disorders

 

Videos

Clinic Excellence Commission (Australia): Falls Prevention - Safe use of Mobility Aids - Walking stick | https://www.youtube.com/watch?v=4RB7OZ5KVyk 

 

National Center on Health, Physical Activity and Disability: How to Choose a Wheelchair | https://www.youtube.com/watch?v=Xc1aDJgdzzk&list=PLwMObYmlSHaM3ILerLzVBh5T11XygRVnS&index=2&t=0s

 

Other

A Family and Caregivers Guide to Home Safety for the Disabled | https://www.safehome.org/resources/family-caregivers-guide-safety-disabled/

 

Muscular Dystrophy Association: Everyday Life with ALS A Practical Guide | https://www.mda.org/sites/default/files/publications/Everyday_Life_with_ALS_P-532.pdf

* From 2005. Might be a little outdated

Mindfulness, Meditation & Imagery

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Websites

 

National Institute of Mental Health | http://www.nimh.nih.gov/

Lead federal agency for research on mental disorders

 

Print

Boroson, M. (2009). One-Moment meditation: Stillness for People on the Go. Winter Road Publishing. 

Goldstein, E., & Stahl, B. (2015). Mbsr every day: daily practices from the heart of mindfulness-based stress reduction. Oakland, CA: New Harbinger Publications, Inc.

Kabat-Zinn, J. (2018). Falling Awake: How to Practice Mindfulness in Everyday Life. New York, NY: Hachette Books.

Kabat-Zinn, J. (2012). Mindfulness for beginners: reclaiming the present moment--and your lifeBoulder, CO: Sounds True.

Kabat-Zinn, J. (2018). The healing power of mindfulness: a new way of being. New York, NY: Hachette Books.

 

Video

Martin Boroson: One-Moment Meditation: How to Meditate in a Moment | https://www.youtube.com/watch?v=YiC8ktpev30 

 

Other

Health Journeys: Audio library | https://www.healthjourneys.com/audio-library

- Guided imagery audio CDs and MP3s programs for stress, sleep, successful surgery, diabetes, depression, anxiety, smoking, pain and more.

Regan, Catherine. and Rick Seidel. Relaxation for Mind and Body: Pathways to Healing [audio CD]. Boulder, Colo.: Bull Publishing, 2012.

Medications, Herbs, Supplements & Other Treatments

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Websites

Choosing Wisely | http://www.choosingwisely.org/

Nonprofit collaboration of over 70 major medical organizations that reviews evidence on tests and treatments that are overused and should be avoided. Promotes conversations between clinicians and patients by helping patients choose care that is: supported by evidence, not duplicative of other tests or procedures already received, free from harm, and truly necessary.

Also, has a free downloadable app for Apple and Android devices

 

Consumer Lab | https://www.consumerlab.com/ 

Independent testing on nutritional products.

 

Consumer Reports | https://www.consumerreports.org 

Reviews and evaluates both alternative and conventional treatments and products.

 

Drugs.com | https://www.drugs.com/

Information on medications, pill identifier, interactions checker and more.

 

Food and Drug Administration (FDA): Educational Resources | https://www.fda.gov/drugs/drug-information-consumers/educational-resources-alphabetical-list

 

Health Canada: Licensed National Health Products Database | https://health-products.canada.ca/lnhpd-bdpsnh/index-eng.jsp

Website maintained by the government of Canada. It contains information about natural health products that have been issued a product license by Health Canada. It includes information on vitamin and mineral supplements, herb and plant-based remedies, traditional medicines such as Traditional Chinese Medicines or Ayurvedic (Indian) Medicines, homeopathic medicines, and many everyday consumer products. 

 

Medline Plus

 

National Center for Complementary and Alternative Medicine | https://nccih.nih.gov/

A government agency providing research-based info. 

 

National Institute on Aging: Safe Use of Medications for Older Adults | https://www.nia.nih.gov/health/safe-use-medicines-older-adults

 

Natural Medicines Comprehensive Database | https://naturalmedicines.therapeuticresearch.com/ 

Clinical data on approximately 90,000 herbal products, dietary supplements, vitamins, minerals, homeopathic products, Ayurvedic medicines, complementary alternative medicines, integrative therapies, alternative treatments (such as acupuncture), traditional Chinese medicines products, and other natural remedies as well as a Natural Product / Drug Interaction Checker. 

 

The Public Health Agency of Canada: A-Z Index | https://www.canada.ca/en/public-health/services/a-z.html

 

US Preventive Services Task Force | https://www.uspreventiveservicestaskforce.org/ 

An independent, volunteer panel of national experts in prevention and evidence-based medicine that provide critical reviews of various screening tests and medical treatments for both professionals and consumers

 

WebMD: Drugs and Medications A to Z | https://www.webmd.com/drugs/2/index

 

Print

Griffith, H. Winter, and Stephen W. Moore. Complete Guide to Prescription and Nonprescription Drugs, 2018-2019. New York: Perigee Books, 2019.

 

Making Treatment Decisions

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Websites

 

Choosing Wisely | http://www.choosingwisely.org

An initiative of the American Board of Internal Medicine Foundation. The mission of Choosing Wisely is to promote conversations between clinicians and patients by helping patients choose care that is supported by evidence. 

 

Consumer Lab | https://www.consumerlab.com 

Their mission is to identify the best quality health and nutritional products through independent testing. 

 

Health Canada

- Drugs and medicationhttps://www.canada.ca/en/health-canada/services/drugs-medication.html

- Drug productshttps://www.canada.ca/en/health-canada/services/drugs-health-products/drug-products.html

 

 

National Center for Complementary and Integrative Health: Health Information | https://nccih.nih.gov/health 

 

Quackwatch | https://www.quackwatch.org

An international network providing links to information on health-related frauds, myths, fads, fallacies and misconduct.

 

HIV

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Websites

 

General HIV Resources

AIDS.gov: https://www.hiv.gov

AIDS Info Guidelines Homepage for links to clinical guidelines, fact sheets, research, and resources: https://hivinfo.nih.gov

Australian Government Department of Health and Aged Care: https://www.health.gov.au/diseases/human-immunodeficiency-virus-hiv

The Body: HIV/AIDS Resources: https://www.thebody.com

Canada HIV and AIDS: https://www.canada.ca/en/public-health/services/diseases/hiv-aids.html

Centers for Disease Control and Prevention: https://www.cdc.gov/hiv/basics (English, Spanish and other languages)

Center for Disease Controls and Prevention: State HIV Laws: https://www.cdc.gov/hiv/policies/law/states/index.html

National Institutes of Health (NIH) HIV Information: HIVinfo.NIH.gov

HIV.gov: https://www.hiv.gov

HIVinfo.NIH.gov: HIV Fact Sheets: https://hivinfo.nih.gov/understanding-hiv/fact-sheets

HIV Medicine Association: https://www.hivma.org

HIV Services Near You: https://locator.hiv.gov/

Health Equity Matters – HIV.LGBTIQA+ Communities. (Australia): https://healthequitymatters.org.au

National Resource Center on HIV & Aging: Resources for Older Adults Living with HIV: https://aginghiv.org

NHS (National Health Service) United Kingdom: https://www.nhs.uk/conditions/hiv-and-aids/

The Body: https://www.thebody.com/

The Well Project – a non-profit organization with a focus on education and resources for women and girls across the gender spectrum: https://www.thewellproject.org

U.S. Department of Veterans Affairs - HIV: https://www.hiv.va.gov

 

Adolescent, Youth, and Young Adults

Be In the Know: Get the Facts about Sexual Health and HIV: https://www.beintheknow.org

Centers of Disease Control and Prevention: Adolescent and School Health: https://www.cdc.gov/healthyyouth/index.htm

National Institutes of Health (NIH) HIV and Children and Adolescents: https://hivinfo.nih.gov/understanding-hiv/fact-sheets/hiv-and-children-and-adolescents

The Laurel Foundation – Empowering Transgender/Gender-Diverse & Youth Affected by HIV/AIDS: https://laurel-foundation.org

 

Advocacy 

AHF Federation – Consortium of AIDS Service Organizations committed to advocacy, education, treatment, and support for underserved U.S. populations: https://www.aidshealth.org/about/federation/

AIDS United: https://aidsunited.org/

AVAC Global Health Advocacy, Access & Equity: https://avac.org/

Disability Advocacy Network Australia: https://www.dana.org.au/how-to-advocate/

National Alliance on Mental Illness: https://www.nami.org/advocacy

Positively UK: https://positivelyuk.org/

 

Alcohol, Tobacco, and Other Drugs

Centers for Disease Control and Prevention – HIV and Substance Use:  https://www.cdc.gov/hiv/basics/hiv-transmission/substance-use.html

NIH – HIVinfo – HIV and Substance Use: https://hivinfo.nih.gov/understanding-hiv/fact-sheets/hiv-and-substance-use

National Institute on Alcohol Abuse and Alcoholism - Treatment for Alcohol Problems: Finding and Getting Help | National Institute on Alcohol Abuse and Alcoholism (NIAAA) (nih.gov)

National Institute on Drug Abuse – The Connection between Substance Use Disorders and HIV: https://nida.nih.gov/publications/research-reports/common-comorbidities-substance-use-disorders/part-3-connection-between-substance-use-disorders-hiv

Substance Abuse and Mental Health Administration (SAMHSA): https://www.samhsa.gov

 

HIV Medicines                           

Mpox vaccine locator: https://www.cdc.gov/poxvirus/mpox/vaccines/vaccine-recommendations.html

NIH – HIVinfo – List of Resources Related to HIV Medications: https://hivinfo.nih.gov/hiv-source/hiv-treatment/medications

The Well Project – HIV Drug Chart (Overview): https://www.thewellproject.org/hiv-information/hiv-drug

 

HIV Stigma and Disclosure

The Body – Disclosing Your HIV Status – Legal Rights: https://www.thebody.com/category/disclosing-hiv-status

The Body – HIV Stigma and Discrimination: https://www.thebody.com/collection/hiv-stigma-discrimination

Center for HIV Law and Policy (CHLP): https://www.hivlawandpolicy.org/

HIV.gov – Standing Up to HIV Stigma: https://www.hiv.gov/hiv-basics/overview/making-a-difference/standing-up-to-stigma

Lambda Legal – Helps with Understanding Rights as an LGBTQ+ person or someone living with HIV: https://lambdalegal.org/issues/

National Minority AIDS Council (NMAC): https://www.nmac.org/

Sero Project | Your one-stop shop for fighting HIV criminalization: https://www.seroproject.com/

U.S. People Living with HIV Caucus (U.S. PLHIV): https://www.hivcaucus.org/

 

Hotlines 

List of State HIV Hotlines: https://ryanwhite.hrsa.gov/hiv-care/hotlines

 

Mental Health, Trauma and HIV

NIH – HIVinfo: HIV and Mental Health: https://hivinfo.nih.gov/understanding-hiv/fact-sheets/hiv-and-mental-health

The Well Project – Trauma and HIV: https://www.thewellproject.org/hiv-information/trauma-and-hiv

Untangling the Intersection of HIV and Trauma: Why it Matters and What We Can Do:  https://www.thebodypro.com/article/untangling-the-intersection-of-hiv-and-trauma-why-

Why All HIV Care Must Be Trauma-Informed Care: https://www.thebodypro.com//article/why-all-hiv-care-must-be-trauma-informed-care

 

Nutrition

From HIV.gov
- Food Safety and Nutrition | https://www.hiv.gov/hiv-basics/living-healthy-with-hiv/taking-care-of-yourself/food-safety-and-nutrition/

From CDC.gov
- Healthy Living with HIV | https://www.cdc.gov/hiv/basics/livingwithhiv/healthy-living.html (also in Español Spanish) 

From Eatright.org 
- Nutrition Tips to Keep the Immune System Strong for People with HIV/AIDS | https://www.eatright.org/health/health-conditions/hiv-aids/nutrition-tips-to-keep-the-immune-system-strong-for-people-with-hiv-aids

From POZ.com
- HIV and Nutrition | https://www.poz.com/basics/hiv-basics/hiv-nutrition

From GLWD.org 
- Nutrition Tips for People Living with HIV/AIDS | https://www.glwd.org/food-is-medicine/nutrition/publications/nutrition-tips-for-people-living-with-hiv-aids/

 

Older Adults with HIV

HIV Clinical Guidelines: Adult and Adolescent ARV – HIV and the Older Person: https://clinicalinfo.hiv.gov/en/guidelines/hiv-clinical-guidelines-adult-and-adolescent-arv/hiv-and-older-person

HIV.gov – Aging with HIV: https://www.hiv.gov/hiv-basics/living-well-with-hiv/taking-care-of-yourself/aging-with-hiv/

National Institute on Aging – HIV, AIDS, and Older Adults: https://www.nia.nih.gov/health/hiv-aids-and-older-adults

National Institute on Aging – Memory Problems, Forgetfulness and Aging: https://www.nia.nih.gov/health/memory-loss-and-forgetfulness/memory-problems-forgetfulness-and-aging#difference

National Resource Center on HIV & Aging: https://aginghiv.org

NIH – HIVinfo – HIV and Older People: https://hivinfo.nih.gov/understanding-hiv/fact-sheets/hiv-and-older-people

The Reunion Project: https://www.reunionproject.net/

SAGE – Advocacy & Services for LGBTQ+ Elders: https://www.sageusa.org/

SAGE – National Resource Center on LGBTQ+ Aging: https://www.lgbtagingcenter.org

 

Smoking Cessation

Be Tobacco Free: https://betobaccofree.hhs.gov

Centers for Disease Control and Prevention – Quit Smoking: https://www.cdc.gov/tobacco/quit_smoking/index.htm

National Cancer Institute – Tobacco: https://www.cancer.gov/about-cancer/causes-prevention/risk/tobacco

Smokefree.gov: https://smokefree.gov

U.S. Department of Veterans Affairs – Tobacco and Health: https://www.mentalhealth.va.gov/quit-tobacco/

You Can Quit 2: https://www.ycq2.org

 

Transgender Health

Centers for Disease Control and Prevention – Lesbian, Gay, Bisexual, and Transgender Health: https://www.cdc.gov/lgbthealth/index.htm

GLMA Health Professionals Advancing LGBTQ+Equality: 10 Things Transgender People Should Discuss with the Healthcare Provider: https://glma.org/10_things_transgender_people_s.php

Human Rights Campaign Resources – Tools for Equality and Inclusion: https://www.hrc.org/resources

UCSF Center of Excellence for Transgender Health: https://prevention.ucsf.edu/transhealth

 

Women and HIV

Centers for Disease Control and Prevention – HIV and Women: https://www.cdc.gov/hiv/group/gender/women/index.html

HIV.gov – HIV and Women’s Health Issues: https://www.hiv.gov/hiv-basics/staying-in-hiv-care/other-related-health-issues/womens-health-issues

NIH – HIVinfo – HIV and Women: https://hivinfo.nih.gov/understanding-hiv/fact-sheets/hiv-and-women

Positive Women’s Network: https://www.pwn-usa.org/

The Well Project: https://www.thewellproject.org

U.S. Department of Health & Human Services: Office on Women’s Health – Women and HIV: https://www.womenshealth.gov/hiv-and-aids/women-and-hiv

 

Working with Health Care Team

Centers for Disease Control and Prevention – Understanding Care:  https://www.cdc.gov/hiv/basics/livingwithhiv/understanding-care.html

HealthinAging.org – Tip Sheet: Living with Multiple Health Problems: What Older Adults Should Know: Tip Sheet: Living With Multiple Health Problems: What Older Adults Should Know | HealthInAging.org

HIV.gov – Starting HIV Care – Find a Provider: https://www.hiv.gov/hiv-basics/staying-in-hiv-care/other-related-health-issues/other-health-issues-of-special-concern-for-people-living-with-hiv/#

HIV.gov – Staying in HIV Care - https://www.hiv.gov/hiv-basics/staying-in-hiv-care/other-related-health-issues/other-health-issues-of-special-concern-for-people-living-with-hiv/#

Medline Plus - Talking with Your Doctor: https://medlineplus.gov/choosingadoctororhealthcareservice.html

Medline Plus - Talking with Your Doctor: https://medlineplus.gov/talkingwithyourdoctor.html

National Institute of Aging: https://www.nia.nih.gov/health/how-choose-doctor-you-can-talk

National Institute of Aging: https://www.nia.nih.gov/health/topics/medical-care-and-appointments

National Institute of Aging: https://www.nia.nih.gov/ health/what-do-i-need-tell-doctor

National Institute of Aging: https://www.nia.nih.gov/health/medical-care-and-appointments/what-should-i-ask-my-doctor-during-checkup

U.S. Department of Health & Human Services: Office on Women’s Health – Women and HIV: https://www.womenshealth.gov/hiv-and-aids/living-hiv/finding-your-hiv-care-team

 

Youth Camps

One Heartland - https://oneheartland.org/camps-and-programs/

Kid Camps.com - https://www.kidscamps.com/special_needs/hiv_aids_camps.html

Plus - https://www.hivplusmag.com/case-studies/youth/2013/07/24/20-great-summer-camps-kids-and-teens-affected-hiv-or-aids

The Laurel Foundation: Empowering Transgender Youth/Gender-Diverse & Youth Affected by HIV/AIDS: https://laurel-foundation.org/programs/

Very Special Camps – Summer Camps & Programs for Individuals with Special Needs: https://www.veryspecialcamps.com

High Blood Pressure

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Websites

American Heart Association | https://www.heart.org

Nonprofit organization offering healthy living tips and information about different heart related health topics, caregiver support and community forums. 

 

Centers for Disease Control and Prevention: High Blood Pressure | https://www.cdc.gov/bloodpressure/ 

 

Mayo Clinic: Video - How to measure blood pressure using an automatic monitor | https://www.mayoclinic.org/diseases-conditions/high-blood-pressure/multimedia/how-to-measure-blood-pressure/vid-20084749

 

Mayo Clinic: High blood pressure (hypertension) | https://www.mayoclinic.org/diseases-conditions/high-blood-pressure/symptoms-causes/syc-20373410

 

Medline Plus: High Blood Pressure | https://medlineplus.gov/highbloodpressure.html 

 

National Heart, Lung, and Blood Institute | https://www.nhlbi.nih.gov/

The National Heart Lung and Blood Institute plans, conducts, and supports research, clinical trials, and observational studies related to the causes, diagnosis, prevention, and treatment of heart, blood vessel, lung, and blood diseases, and sleep disorders. 

 

Videos

Mayo Clinic: How to measure blood pressure using an automatic monitor | https://www.mayoclinic.org/diseases-conditions/high-blood-pressure/multimedia/how-to-measure-blood-pressure/vid-20084749 

 

Medline Plus: Hypertension Overview | https://medlineplus.gov/ency/anatomyvideos/000072.htm

 

National Association of Community Health Centers: How to use your home blood pressure monitor | https://www.youtube.com/watch?v=0tGyRJxbYpQ 

Communicating with Family, Friends & Health Professionals

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Websites

Family Caregiver Alliance: Pathways to Effective Communication for Healthcare Providers and Caregivers | https://www.caregiver.org/pathways-effective-communication-healthcare-providers-and-caregivers 

 

Print

Links to PDFs 

- "Effective Communication Skills: Resolving Conflicts" by Naomi Brower and Jana Darrington (usu.edu)


- "Effective Communication Skills: "I" Messages and Beyond" by Jana Darrington and Naomi Brower (usu.edu)

Caregiving

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Videos

A male caregiver with Parkinson's talking about being a caregiver for his Mother. 

  • Dance for PD is proud to share this intimate conversation with Dave Iverson – familiar to many in our extended global family as the writer and director of the documentary Capturing Grace – as he discusses his highly-anticipated new memoir Winter Stars, the intimate story of an elderly mom, an aging son, and life’s final journey. This conversation took place live on January 19, 2021.

Brain Health

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Brochures

The McKnight Brain Research Foundation